Connection and community
Background
Jo (not their real name) has a diagnosis of a moderate learning disability and autism. Jo is non-verbal and communicates through gestures and visual supports. Although Jo can read, Jo does not write or use sign language. In the past, Jo was able to express thoughts and emotions through Facilitated Communication (FC) using an iPad with their mother’s support. Jo’s words offer an insight into Jo’s inner world:
“I am different… I am not able to use my voice… I want people to understand and accept my quite different way of thinking and my quite different way of life. I am happy to be autistic.”
Before moving to Marcus & Marcus, Jo lived with mother and sisters. As Jo’s anxiety increased, Jo began displaying distressing behaviours such as self-injury, aggression, and obsessive routines around shopping and collecting leaflets. Jo was eventually excluded from local day centres, and family life became strained.
After several moves, including to shared accommodation and later a self-contained flat, it became clear that Jo needed a more personalised environment designed around Jo’s sensory and emotional needs.
Our Approach
The Marcus & Marcus team worked closely with Jo’s family to better understand the causes of Jo’s anxiety and how to build trust and consistency. The right team was crucial; staff were selected for their patience, confidence, creativity, and commitment to autism-friendly practice.
Jo later moved into Jo’s own home, a spacious three-bedroom house with a large garden. Together with Jo’s family, we designed an environment and support plan focused on reducing anxiety and promoting wellbeing:
- Sensory-friendly environment:
A dedicated sensory room with soft lighting and beanbags, a jacuzzi in the garden for daily use, and outdoor swings and seating for relaxation. - Personal space and structure:
Open-plan living areas, Jo’s own bedroom, which Jo helped arrange, and personalised visual schedules to support predictability and reduce anxiety. - Proactive emotional regulation:
Staff introduced social stories, countdown calendars, and visual aids to help Jo prepare for changes and transitions. - Positive behaviour support:
The focus shifted from reacting to challenging behaviour to understanding triggers, teaching coping strategies, and celebrating achievements.
Outcomes
Since settling into Jo’s new home, Jo’s life has transformed. The combination of the right environment, consistent staff, and a proactive approach has led to significant improvements in Jo’s wellbeing and independence:
- Reduced anxiety and self-harm:
The frequency and severity of self-injury have decreased dramatically. Jo’s home no longer requires padded walls, reflecting Jo’s improved emotional regulation. - Improved communication and relationships:
Jo uses gestures and visual supports to express self and now enjoys positive, regular contact with family. Jo’s mother and sisters visit weekly for meals and activities, and Jo’s father visits fortnightly, often bringing the family puppy. - Increased confidence and independence:
Jo confidently manages routines, helps with daily living tasks, and has successfully adapted to unexpected changes with support from visual tools and consistent routines. - Enhanced engagement and focus:
Jo participates in community activities including music sessions, swimming, and walks. Jo’s concentration has improved, and she can now complete puzzles and intricate 3D models, proudly displaying them in her home. - Quality of life and happiness:
Jo is calmer, happier, and more connected to those around her. I’s family recently invited her home for Easter — her first overnight visit since moving into supported living — marking a powerful moment of trust and togetherness.
Today, Jo continues to thrive in an environment that supports her individuality, celebrates her achievements, and promotes her autonomy.
